I thought My Transplant Failed

I called the doctor’s office.  I had taken a week off work to go to Florida to meet my first grand son.  Instead, I was in misery and wondered if my transplant had failed.  I had sweats, chills, constant coughing, and an episode of explosive vomiting, which really is better than trying to breath deep and hope you can “keep it down.”  I spoke to a nurse who determined I had the flu.  She said don’t come coughing in here, we’re full and busy.  She gave me a prescription for cough syrup with codeine.  I had an appointment with my oncologist in about a week, so I just concentrated on resting and getting better.

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Diane and our grandson, Kellen. I hope to meet him in March

When I did see my doctor, I asked if I was in remission. She said “partial remission.”  I asked what is the difference between partial and full remission.  “Very expensive and intrusive testing” was her answer, so, I think I can be happy with partial remission.  If this is partial remission, I could enjoy it the rest of my life.  I passed the 6 month mile marker since my transplant.  The reward for that is to stop taking two horse pills daily (Acyclovir 800mg).  They’re the size that when I put one in my mouth and take a couple swigs to wash it down it will often stick there like the start of a log jamb in the back of my throat.  Because of a low white blood count, I am also to temporarily quit taking my daily low dose of Revlimid.

A friend of mine, Jerry Wright, had cancer. His wife posted this on their site a couple weeks before he died on December 15th. Tami, I hope you don’t mind me reposting it here.

Written Dec 2, 2013 8:32pm
I think it’s safe to say that Jerry’s happiest times and fondest memories are a result of time spent on the shores, and in the waters, of Suttle Lake where he delighted to camp since he was a toddler…..where he was determined he would teach me to waterski (NOPE), and where he was sure I would learn to love camping as much as he did (well…maybe).

Jerry commented last evening, as we prepared for the night, that he was ready to fold up….I think he meant for the night, but it reminded me of the process of “breaking camp” at Suttle Lake….a lengthy process that included folding up the tent; this folding took time…it was about the least fun of all the activities, and though it had quite a presence when it was erected, when the tent was folded you knew the camping trip was pretty much over.

Jerry’s tent is folding…he hasn’t eaten in nearly two weeks, sleeps most of the time, and is surviving on small sips of water and tea. I feel like we’re breaking camp; putting things in order…preparing for the trip home; one last stroll to the shore…reminiscing about what a great time it was….and this is what I read in 2 Corinthians 5:1 today:

“For we know that if the earthly tent which is our house is torn down, we have a building from God, a house not made with hands, eternal in the heavens.”

Tamara

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4 comments on “I thought My Transplant Failed

  1. Don MacDonald says:

     Hello very sorry to hear about your buddy. I know that feeling very well . Been there a couple of times.  ONE place I dont like to be .  So you take care of youself ok. I dont want to be there any time soon Maybe in another 50 years ok .      Lets hope that nurce is right  or Dr that said your in remission . BE sides we will have a new landing craft to run this summer for I am back building but being very carfull.       Ya  can understand why the nurce jumping all over the place  YOUR lucky they did did throw a mask ok ya and told you lay low. or stay out of there way.. RIGHT NOW I dont even want to be around any Meidcal office or  a lot of people . Diane is staying low . She was working the last 3 days last week and I was taking her to work and picking her up so she did not have to use the bus. FOR I usely take her to work and she rides the bus but lats week was different .       YOU KNOW if and when  you  fine that other ship or boat you want done I will be ready for it.  NOW I am going to  have to refine those pictures I told you about of  MIcky Vill .MC Minville.       OK buddy my prayers to ya and your in them  each night.   Were going to  have to get  back together again this summer all of us .  OK  Have a good week do keep in touch and let  the lord lead you   ,  By the way feels good not be looking behind me any more for the blue uniform Monky ;-))   talk to ya soon.  Say hi to your Diane for us   DON

    ________________________________

    • scanfie says:

      Don: I hope to see you guys soon, but I don’t know when I’ll be in Portland next. Hopefully after I’m finished with all this coughing. I’m sorry to hear that Diane is a new victim of Obamacare.

  2. Tamara Wright says:

    I’m sorry, Scott, that you were prevented from meeting your new grandson…..he’s beautiful; but cheered by the fact that your transplant isn’t failing :).

    I don’t mind that you re-posted the CaringBridge journal entry….in some ways that seems so long ago and in others, so fresh. I’m missing Jerry very much and trying to make my way into a “new normal;” hard, hard work.

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