One more infusion will get me to the free week of series two, except that it’s no longer free. It will be free from shots, but since I’m tolerating the meds well, I’m instructed to continue the thalidomide through the free weeks. The shots leave red patches on my stomach. They’re starting to resemble a camouflage pattern but I suppose its really chemouflage. The needle is actually short and small. I told the nurse she could stand at the edge of the carpet in the Chemo lounge, and I would stand by my chair and hold my shirt up. She could test her skill and toss it like a dart. Liability is such a big wet blanket that spoils so much fun.
Hi, everyone: I’ve made it into my “free” week of the first series of Chemo treatments. I have no shots and no Chemo pills this week. Monday will begin Series Two. I think it’s going well, I feel tired but not sick. I feel like I’m walking on someone else’s legs, some very slow, old guy’s legs. There is some general weirdness going on in my body, hopefully that’s the good stuff working. I have a taste in my mouth that makes most of what I eat or drink not taste right. So far, chocolate and ice cream still taste good. I’m working full time and hope to continue. If you have a moment, please say a prayer for 4 year old Riley, in the hospital in Portland with a serious virus causing his brain to swell.
I just got home from my second Chemo treatment. In official Chemo Lingo, that would be Day 4 / Treatment 2. So far, any effects I’m feeling have been very minor and fleeting (but hopefully the good effects are going on inside like they are supposed to). Day 1 / Treatment 1 was Monday, February 25th. It was a longer stay, including an IV and a visit to the Chemo Lounge. If all goes well, I can avoid having IV’s or a port, and get my Velcade shots sub-cue. They have a polite medical term for sticking a needle in a handful of flab, I forgot what they called it, but that is subcutaneous. After the hospital visit (and every evening of the two “on weeks”) I go home and take about 15 pills. One is the other main component of my Chemo, that’ the Thalidomide pill, a hand full of small steroid pills, and some other assorted pills, some I take daily anyway.
This will go on for three cycles of two weeks on and one week off. At the end of those cycles, I will be re-evaluated and may get another cycle or two, and then maybe a stem cell transplant.
Thank you for your prayers for Diane and me, for all the kindness, and for asking how we are doing. A lot of folks are very private about their medical concerns, I probably talk too freely about mine, but blessings have come from that. You and others telling me you are praying are blessings; some were very unexpected. One said they don’t normally pray, but they are praying for me. That fills my heart with hope.